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Black Canada Talking™ is a live online event that provides Black Canadians opportunity to give their takes and POVs on stories that are of importance to them.
On the June 13, 2021 of Black Canada Talking™, we had a conversation about sickle cell and World Sickle Cell Day which is on June 19th.
The guests for the conversation were:
Elle Cole is a mom of twin daughters, one of whom is living with Sickle Cell Anemia. She serves as a health advocate for Sickle Cell Disease and Type 1 Diabetes. She is an ambassador for St. Jude Children’s Research Hospital. And raises awareness about Sickle Cell Disorders to help make the quality of life for people living with genetic disorders and autoimmune diseases better.
Each day more than 30,000 people follow her journey on website, Instagram and Facebook.
Elle is a recipient of a Bronze Congressional Award and has been featured on NPR, ABC 7, BBC World Service Radio, and a guest on many podcasts. She is a writer, motivational speaker, and social media strategist. CleverlyChanging.com and the Cleverly Changing Podcast are a go-to resource on health, wellness, finances, and parenting. She is also a passionate storyteller. She holds a B.A. degree in English and History.
You can find more information about Ms. Cole via:
Website
Instagram
Cleverly Changing Podcast
Twitter
Facebook
Pinterest
YouTube
Email
Biba Tinga is the President/Executive Director of the Sickle Cell Disease Association of Canada (SCDAC) and at an international level serves on the Board of Directors of the Global Alliance for Sickle Cell Disease Organizations (GASCDO).
As a parent of an adult living with Sickle Cell Disease, she is pursuing a lifelong dedication to improving conditions for people living with sickle cell disease and for their families. She brings her unique understanding of the needs of the people in this community to fight against Sickle Cell Disease.
She is a working mother and a tireless advocate for the Black community.
You can find out more information about Sickle Cell Disease Association of Canada/Association d’Anémie Falciforme du Canada via:
Website
Phone: (514) 266-9083
Daniel Bonzil has worked in facilitation, training, translation, and he is currently an interpreter for Haitians and French speakers who need interpretation at their medical and immigration and legal appointments.
Sickle Cell Disease was an unknown notion as foreign as a distant galaxy at a trillion light years away until his youngest son was diagnosed with this chronic condition at the age of 5. For a few years, life seemed like a roller coaster that would not stop. As Daniel and his wife learned more about the disease and became involved in volunteering, gradually order came out of chaos, acceptance and resilience sprung from adversity, gratitude manifested despite their trials. What happened? They put into practice what a famous radio broadcast pastor said : «Do not waste your pain, use it to help others». Learning from our pain, sharing our tidbits of wisdom and opening our hearts and mind to the others who have travelled this road before, that is a more productive way to deal with the challenges of having Sickle Cell Disease in the family.
Daniel is a Board member of The Sickle Cell Association of Québec. The Sickle Cell Association of Québec is a volunteer organization and a leading source of solace to children and anyone suffering from sickle cell disease. They educate families on lifestyle practices and personal coping skills for living with this condition.
You can contact Daniel via:
Ulysse Guerrier was born in Toronto and Raised in Montreal. He was diagnosed with Sickle Cell S-Beta Thalassemia at the age of 2 years old. He started volunteering for The Canadian Sickle Cell Society at the age of 16 and eventually became a board member at 18 years old. He is very involved in the Sickle Cell Community in Montreal and Toronto and hopefully one day around the world. Formerly he was the Project Coordinator of the Sickle Cell Program at TAIBU Community Health Centre. Ulysse, a Sickle Cell activist, also started a YouTube channel called Our Sickle Life where he captures moments of life and the struggle of living with Sickle Cell Disease. He is a past board member of the SCDAC. Currently, Ulysse is the Director of Patient Support of the Sickle Cell Association of Ontario and Co-founder of UJIMA Sickle Cell Emergency Fund.
You can contact Ulysse via:
Instagram
Sickle Cell Association of Ontario
During the conversation, the guests talked about:
– What is Sickle Cell Anemia and the effects from a person suffering from it
– How Sickle Cell has impacted Elle, Biba and Daniel as parents with children suffering from it
– How Sickle Cell had impacted Ulysse throughout his life
– Deciding to become an advocate for Sickle Cell Disease and how it has changed their lives
– The changes behind the support back in the past compared to now and whether things has been better or worse
– The impact that the pandemic has had on those are suffering from Sickle Cell Anemia
– The stigma surrounding Sickle Cell Disease
– Calls to action within government, community, medical profession regarding Sickle Cell Disease
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God bless, peace, be well and keep the faith,
Dr. Vibe
2020 Podcast News Award Winner – Canadian Ethnic Media Association
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